Whether you have been newly diagnosed with migraine or have been living with it your entire life, there are probably times where it can feel incredibly isolating. But you do not have to go through it alone. In fact, there are countless resources available that you can turn to for migraine awareness, education and support.
Migraine Blogs & Communities
Only a handful of blogs are committed to sourcing relevant and research-backed information about migraine and other chronic headache disorders. Additionally, there are several online communities where you can share your experiences with other patients.
Part of the Health Union ecosystem of condition-specific websites, migraine.com encompasses educational articles, advocate features and patient forums. Visit migraine.com ➜
Migraine Again prides itself on being a platform “by patients, for patients” in an effort to help others better manage and live with the condition. Visit migraineagain.com ➜
Newly launched in 2018, Migraine Disease is the brainchild of top advocates Tammy Rome and Teri Robert. All of its informational articles are reviewed by headache specialists. Visit migrainedisease.com ➜
Named one of the top migraine blogs by Healthline, TheraSpecs articles include detailed insight into migraine as well as one of its most notorious symptoms: light sensitivity. Visit theraspecs.com blog ➜
The Mighty Site is chock full of patient voices who bust stigmas and showcase what it is like to live with a disabling chronic illness—all with a good mix of humor, inspiration and personality. Visit themighty.com ➜
Speak Your Migraine
With backing from Amgen and Novartis, the Speak Your Migraine campaign offers unique perspectives for patients and caregivers through videos and other content. Visit speakyourmigraine.com ➜
Migraine on Reddit
Connecting with others to ask questions, share experiences and spread knowledge is the focus of this highly-active community on Reddit. Visit reddit.com migraine community ➜
Migraine Support Organizations
How can you keep informed on the latest in migraine-related news? There are several support organizations that lead the charge in research and education. In addition, they also perform a critical function in the advocacy of patients in the public forum. This can translate to increased funding opportunities, the advancement of clinical research studies, and the continuing education of new and existing headache specialists. Specific organizations include:
- Alliance for Headache Disorders Advocacy
- American Migraine Foundation
- American Headache Society
- Association of Migraine Disorders
- Headache and Migraine Policy Forum
- International Headache Society
- Migraine Research Foundation
- National Headache Foundation
Many of these organizations also hold fundraising events throughout the year and allow for other ways to get involved. Click on the links above in order to learn how you might support their efforts.
Migraine and Headache Specialist Finders
The role of qualified migraine experts in patient care and treatment cannot be underestimated. In addition to helping properly diagnose and manage the condition, they often represent an empathetic ear for patients. Thankfully, there are multiple physician finder tools available to locate and contact headache specialists and neurologists in your area.
- Find Help (American Migraine Foundation)
- Healthcare Provider Finder (National Headache Foundation)
- Certified Headache Doctor Finder (Migraine Research Foundation)
Signing Up for Clinical Trials for Migraine
Individuals interested in participating in a verified clinical study on migraine can see what is available and sign up through clinicaltrials.gov.
Following the Influencers
Social media can be a great outlet for connecting with key advocates in the migraine community. Among headache specialists, two in particular stand out: Dr. Amaal Starling and Dr. Robert Shapiro. Both are using their social platform to fight stigma and share key research insights.
.@NIH funding coded as "Migraines" rose $4M ($18 to $22M) from 2016 to 2017.— Robert Shapiro (@headachedoc) May 25, 2018
Actually, $3,540,601 of the 2017 "Migraines" funding included the overall budget of the @NIMHgov intramural brain bank ("HBCC") - very little related to #migraine.https://t.co/8aMuoijoj9 https://t.co/B8o4M1QkJX
There are dozens of patient advocates as well. Many have their own personal blogs, participate in advocacy events and are active on social media.
- Katie Golden
- Jaime Sanders
- Tammy Rome
- Lisa Jacobson
- Erica Carrasco
- Angie Glaser
- Beth Morton
- Julie Ryan
Migraine World Summit
The biggest migraine and headache disorder questions are answered by leading professionals as part of the Migraine World Summit, held virtually every year in the spring. It is one of the most successful patient-centered conferences to date and is even free for a limited time with paid access available year round. Learn more ➜
Fundraising for Research
Runnin’ 4 Research and Miles for Migraine are two charitable organizations devoted to raising money that can be used to fund clinical studies for migraine. Their walk/run events also offer a fun environment for the whole family.
Migraine Awareness Month (MHAM) in June
Image source: migraine.com
Every June, the spotlight is on migraine and chronic headache disorders as part of Migraine & Headache Awareness Month. Here are just a few of the ways to get involved in the conversation:
Social Media Challenges
Symptoms, stigma and stories are front and center every day in June with various social media challenges—such as this one offered by Migraine Disease. There are even some cool frames for your profile pictures too. This is your opportunity to voice your personal experiences and show others what it means to have migraine.
Shades for Migraine
Many supporters and patients will be wearing sunglasses on June 21st (the longest day of the year) to bring visibility to migraine during Shades for Migraine. While we don’t advise wearing sunglasses indoors because of its negative effects on light sensitivity, we do encourage you to wear your indoor TheraSpecs—like our friend James below.